Monthly Archives

October 2014

Press

News Story on CBS LA

October 31, 2014

Redondo Beach Teen Works To Help Families Deal With Cystic Fibrosis

HERMOSA BEACH (CBSLA.com) — A Redondo Beach teen is working to help families deal with cystic fibrosis — the emotional and the financial costs.

CBS2’s Health Reporter Lisa Sigell recently met up with 17-year-old Claire Wineland and talked to her about her passion.

“I want to do everything and anything I can possibly do to show that I’m alive,” she said. “I want to get fully submerged in everything.”

Claire was born with cystic fibrosis, an often fatal disease that attacks the lungs… CLICK HERE TO READ THE FULL ARTICLE.

Throwback Thursday

Labor Bear… 4 Years Later

October 30, 2014

My first Throwback Thursday video featured Labor Bear. Here’s an update on Labor Bear four years later.

Here’s the video where I first introduced Labor Bear.

Press

TEDxMalibu – Life of Impact: Claire Wineland

October 25, 2014

Claire Wineland was born with cystic fibrosis or “CF” a genetic disease that causes excessive mucus secretions and collection, especially in the lungs This is not, however, what characterizes her. Claire is a fifteen year-old singer, an artist, a composer, and a natural-born comedian and speaker.

Press

Living life from a hospital room – CNN Health

October 23, 2014

Note: CNN asked Claire to write an article about her experience spending much of her life in the hospital.

(CNN) — I am 17 years old and a senior in high school. I am also, like thousands of other people living on this planet, sick.
Like “spend a quarter of my life in the hospital, do treatments every day to stay alive” sick.

I was born with cystic fibrosis, which the Cystic Fibrosis Foundation describes as a “life-threatening genetic disease that primarily affects the lungs and digestive system.” I was only 13 years old when I was forced to face the fragility of my own life. A routine surgery landed me in a medically induced coma for two weeks with a mere 1% chance of surviving. But survive I did… CLICK HERE TO READ THE FULL ARTICLE